World Health Organization
Lived experience informing World Patient Safety Day 2026: Safe care for noncommunicable diseases
Meaningful Engagement of People with Lived Experiences
30 Mar 2026
World Health Organization | 15 Feb 2023
“I am learning how to undertake advocacy in this sector, […] as I found that not all people with rheumatic heart disease are united and there is no group or support system.”, says Anu Gomanju, a public health professional and graduate student in Nepal, who was diagnosed with the health condition at the age of 11. “If we can come as one, we can share our challenges or experiences as my problem could be a solution for someone else.”, she adds.
Despite recent progress on this topic, meaningful engagement does all too often not take this hurdle from intention to action and risks to remain a tokenistic tick-box exercise.
Watch Anu’s story: