Meeting the informational needs of people with advanced breast cancer: a global expert review and call-to-action for 2025-2035 (Goal 6)

For people living with advanced breast cancer (ABC), the complexities of making treatment decisions, adhering to medication regimens, and balancing the social and personal aspects of the disease can be overwhelming. People with ABC need comprehensive information and resources to understand their disease, prognosis, and treatment options. However, this information is often difficult to access, interpret or navigate, leaving many feeling confused, frustrated and helpless. This manuscript evaluates the global ABC information landscape and its evolution since 2015, it analyzes the ongoing challenges faced by people with ABC, and outlines recommendations for the ABC community over the next decade. It summarizes research conducted for the ABC Global Alliance's Global Decade Report 2.0. The main findings are: a) The availability of ABC information has increased, but topics remain limited; b) ABC information from healthcare professionals is often limited to clinical topics; c) Patient advocacy groups are now crucial, trusted sources of ABC information; d) Online ABC information presents both opportunities and challenges; e) Global disparities in access to some topics of ABC information persist. The findings from the ABC Global Alliance's Global Decade Report 2.0 have informed the development of a new ABC Global Charter. The ABC Global Charter 2.0 defines ten new achievable and measurable goals for the decade 2025-2035, aiming at improving the lives of people living with ABC worldwide.