Knowledge Action Portal on NCDs

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<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Power dynamics and power reorientation towards individuals with lived experience – Paul T Conway, USA <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Power dynamics and power reorientation towards individuals with lived experience – Paul T Conway, USA

Paul was diagnosed with kidney disease at the age of 16, after a random urine test during a high-school sports physical examination. This was a blow for Paul who had wanted to join the military, which was a family tradition. Instead, his father encouraged him to serve his country another way through a career in politics and government. Paul lived for 13 years with chronic kidney disease before...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Power dynamics and power reorientation towards individuals with lived experience – Anu Gomanju, Nepal <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Power dynamics and power reorientation towards individuals with lived experience – Anu Gomanju, Nepal

Anu was diagnosed with rheumatic heart disease in 2001 at the age of 11 after suffering rheumatic fever caused by repeated episodes of strep throat infection. Following surgery, she lived without major physical complications for 15 years. But in 2016, she suffered congestive heart failure resulting from damage to multiple heart valves. She underwent a second open heart surgery. Although the surger...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Living experience as evidence – Prachi Kathuria, India <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Living experience as evidence – Prachi Kathuria, India

Prachi has been living with asthma and chronic bronchitis for over 20 years, which has led to other respiratory problems. When she was young, there was limited understanding among clinicians and the community which led to delayed diagnosis and challenges in managing her condition. Prachi lives in northern India, where air pollution levels regularly reach a very hazardous 500 on the Air Quality Ind...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Living experience as evidence – Odireleng Kasale, Botswana <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Living experience as evidence – Odireleng Kasale, Botswana

Odireleng is in long term recovery after suffering a period of substance and alcohol misuse. Having found it difficult to find the right support in Botswana, it was at a rehabilitation centre in South Africa where she had the breakthrough that set her on the road to recovery. Inspired by the care and support she had received, which transformed her life, she decided to train as an addiction coun...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Informed decision making and health literacy – Allison Ibrahim, Kuwait <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Informed decision making and health literacy – Allison Ibrahim, Kuwait

Allison’s journey into advocacy began with her type 2 diabetes diagnosis in 2012. She received support from what she describes as a wonderful endocrinologist in Kuwait who introduced her to the power and potential of advocacy. Allison’s doctor walked her through the practical process of monitoring herself, and simultaneously introduced her to the steps of inquiry and what to consider in the cr...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Informed decision making and health literacy – Patrick Boruett, Kenya <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Informed decision making and health literacy – Patrick Boruett, Kenya

Patrick was diagnosed with bipolar disorder in 2011 and describes himself as having lived in denial for 4 years. The diagnosis was a huge personal shock to him. Despite his background in pharmacy, his knowledge of mental health was limited. His health-care provider took very little time and attention to build Patrick’s understanding of his condition. After being hospitalized against his wishes i...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Exclusion and the importance of involving groups that are marginalized – Olga Kalina, Georgia <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Exclusion and the importance of involving groups that are marginalized – Olga Kalina, Georgia

Olga was diagnosed with paranoid schizophrenia in 2005 at the age of 21 years. On three separate occasions she was involuntarily hospitalized in a psychiatric facility. During her first period of psychosis, Olga lost touch with reality. She stopped communicating with her family and engaging with the world around her. Confused and afraid, Olga’s family sought medical help at a psychiatric institu...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Exclusion and the importance of involving groups that are marginalized – Matt Jackman, Australia <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Exclusion and the importance of involving groups that are marginalized – Matt Jackman, Australia

After experiencing major clinical depression and anxiety disorders throughout their upbringing as a result of family and childhood abuse, neglect and abandonment, Matt was diagnosed with bipolar disorder and complex post-traumatic stress disorder (PTSD) in 2016. The onset of a stressful work environment and ongoing bullying led to their first serious episode and hospitalization. They have struggle...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Community engagement and networks – Phil Collis, United Kingdom <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Community engagement and networks – Phil Collis, United Kingdom

Phil was born in a small village in the United Kingdom. In 1975, at the age of 17 years and without warning, he suffered a subarachnoid brain haemorrhage which caused a stroke. Thiswas a hugely traumatic experience which left him temporarily paralyzed, changing his life forever. He still suffers the consequences to this day. Following Phil’s stroke, he became reliant on a team of clinicians a...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Community engagement and networks – Mariana Gómez, Mexico <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Community engagement and networks – Mariana Gómez, Mexico

Mariana was born and raised in Mexico. In 1984, at the age of 6 years, she was diagnosed with type 1 diabetes after falling into a coma for nearly a week. At the time, doctors in Mexico had a limited understanding of type 1 diabetes and Mariana was only diagnosed due to the chance presence of a military health care professional who recognized her symptoms. At that time, the type 1 diabetes diag...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Advocacy and individual rights – Pei Yan Heng, Singapore <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Advocacy and individual rights – Pei Yan Heng, Singapore

Pei Yan is a secondary school teacher living in Singapore. She was diagnosed with type 2 diabetes in 1996, at the age of 10 years. Unusually for type 2 diabetes, Pei Yan requires the regular use of an insulin pump. As a citizen of Singapore, Pei Yan recognizes that she is privileged to live in a country with universal health care, with to access a well-resourced system that offers quality care ser...

13 Apr 2023

<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--news-and-events.html.twig ✅ field--node--title.html.twig ▪️ field--node--news-and-events.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> People Power series: Advocacy and individual rights – Kwanele Asante, South Africa <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

13 Apr 2023

World Health Organization

People Power series: Advocacy and individual rights – Kwanele Asante, South Africa

Born in South Africa in 1969, Kwanele is in remission for breast cancer. She was diagnosed in 2006 aged 37 years, and sustained chemotherapy-induced heart muscle damage in 2007 which later led to congestive heart failure. In 2014, Kwanele was also diagnosed with bipolar disorder. Kwanele’s story demonstrates how health inequalities impact black women experiencing breast cancer across South Af...

13 Apr 2023

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